Showing posts with label adapting. Show all posts
Showing posts with label adapting. Show all posts

Practical Ways for Teaching Nonverbal Learners--Come Join Us!

   You are invited to join the conversation between Peggy Ployhar and myself on October 1, 2019 at 8pm (Central Time Zone). We'll be talking about ways you can teach your nonverbal children and teenagers. This conversation is directed at families who homeschool but is relevant to nonverbal learners in the school system as well. Bring your questions about adapting instruction and evaluation and we'll give them our best go!

If you haven't yet seen the awesome website SPED Homeschool sponsoring this event, it's a MUST SEE for families living with special needs. While the target audience is homeschooling families, all families living with disability will find a wealth of information and support at this site. There are articles and videos galore from experts with a wealth of information and personal experience. Many of the topics address issues extending outside the school day, such as incorporating therapy into the day or making religious instruction accessible to kids with a variety of special needs. If you participate in Facebook, SPED Homeschool sponsors some groups that sound pretty fabulous. Take a few minutes to browse the site and you will be impressed.

See you on October 1st!
Rose-Marie

Easy--and Free--Playing Card Holder

Kids with fine motor issues (including very young typically-developing children) can find it difficult to play the card games they love. It’s just hard to hold those cards sometimes!

And if you have no hand use and someone else has to show you your cards without peeking, that can be a real tough order!
But it doesn’t have to be that way.
Today we’re going to make a quick and easy playing card holder using free materials you already have on hand.
Success for kids with limited motor skills
This isn’t my original idea, and I sure wish I knew where I first heard it so I could give credit. It was years ago, and during that time I’ve made a passel of these card holders for my own children and students to use. It’s an idea worth sharing, and so here you go...
Whether it’s in your mail or in the computer aisle at the store, you are bombarded by computer CD disks offering free this or that, right? Don’t throw them away...save two!
free advertising CDs...you’ll need two of these

You’ll also need some Super Glue and a paper towel or waxed paper to work on. Super Glue is not nice to get on your pretty countertops. Trust me. Ooops.
I recently discovered LocTite’s Control Extra Time Super Glue and I love it! It work so much better than those little metal squeeze tubes. It’s easy to control where the glue will go. Plus the nozzle doesn’t clog. The glue itself works just like other Super Glues, but the packaging is amazing.
I’m loving LocTite’s Control Extra Time Super Glue!
Notice the friendly paper towel protecting my countertop?
Draw a ring of Super Glue on the edge of the inner hole on one disk. I like to glue the label sides together so the holder is less visually distracting.

Draw a circle of glue around the inner hole
Now lay the second disk on top of the first, offsetting them by about 1/8”. The offset is important!
See how the holes are offset a bit?

The ruler is marked in 1/8ths, so you can see how much the disks are offset.
What a world of difference an eigth of an inch makes!
By offsetting the disks, it’s easy to slip your playing cards between.
You can wedge the disks apart a bit if you need help slipping the cards between
Fan out your cards and start your game! You can set down your hand and pick it up without the cards getting mixed up...very handy for little fingers and those that need a little assistance.
Your cards are ready for whatever card game your kids are eager to play!
There...simple, free and just in time for summer card games on the lawn! Enjoy! 


7 Ways to Deal with Daily Time Bandits

Have you ever heard the adage “We all have the same 24 hours in a day...it’s all in how you choose to use them”?


As a parent of a child with physical or cognitive disabilities, this can feel like a slap in the face. We don’t necessarily have a choice about how we are going to use our hours. We accommodate our children’s needs for physical care. We give our children the time they need to process and carry out instructions. These things cannot be hurried.

Last week a friend and I were commiserating about how time-consuming physical disabilities are. Sure, there are the big time-gobblers that come with the territory, like IEP meetings and endless doctor appointments.

But even more than that, there are day-to-day time thieves related to disabilities that steal away tremendous minutes. Every day. Day after day. Month after month. Year after year.

Moms of able-bodied children can direct their kids to complete their own care. Kids may not be  definitely are not quick when they are toddlers but there is the hope that things will speed up as the kids mature.


This isn't necessarily true for kids with disabilities who will grow to become adults with disabilities.


Let’s look at just one example. When the mom down the street needs to run errands, she can instruct her kids to grab their shoes and coats and meet her at the car.



Moms of kids with severely physically challenged children go through an entirely different process:

·        Check and replenish bag of travel supplies (5 minutes)

·        Put on AFO’s and shoes (5 – 10 minutes depending on the style)

·        Put on child’s coat (2 minutes)

·        Load child into wheelchair and walk outside (2-3 minutes)

·        Unload ramp or lift-up seat, secure child or wheelchair, reload ramp or lift-up seat (5 – 7 minutes)

·        Load wheelchair, if using lift-up seat (1-2 minutes depending on how many parts you have to remove)

·        Stop to recover breath if said wheelchair is over 30 pounds. Most standard wheelchairs are. Dust road grime from the wheelchair tires off your clothing (1 minute)

·        Go back to the house for your own coat and purse, DOUBLE-CHECK THAT YOU HAVE YOUR KEYS (2 minutes...infinitely longer if you have forgotten your keys)

Hmmm. It takes 20 – 30 minutes just to load up the car. This assumes the child doesn’t need to return inside to use the toilet. This happens.

And that’s just loading the car. What about dressing? Bathing? Toileting? Eating? Homework? The list goes on, and those extra 10-, 20-, 30-minutes add up fast.

How do we respond to this?

1. We commiserate with one another. It feels so validating to talk with other parents facing the same challenge of how to fit everything into the day. Our 24-hours are not our own. You and I are not the only people who truly don’t have discretion over how we will spend all our hours. Sometimes it’s nice to know you aren’t paddling the boat alone, isn’t it?

2. We streamline whenever possible. It’s helpful to keep a well-stocked backpack in the car with all the items you might need away from home. Our family keeps a change of clothes, an extra jacket, extra toileting supplies, spare g-tube extensions and an extra bolus syringe in the car for emergencies. To remind myself that something needs to be restocked, I toss it up on the passenger floor so I’ll see it when we’re unloading.

How else can you streamline your day? Can you organize your feeding or toileting supplies in the room to reduce backtracking and unnecessary steps? Can you purchase frequently needed supplies in bulk? Can you set out clothes and school items the night before?

3. We give ourselves extra leeway. Our families don’t operate on the usual timetable, so it does no good to try to squeeze into typical standards. While our destination may only be 10 minutes away, accept the need to start loading the car 30 minutes before we need to be there. Don’t fight it; go with the flow.

4. We are gentle on ourselves. We can’t get everything done in a day that needs to be done. But if, at the end of the day, our families tuck into bed safe, fed, clean and happy, we have accomplished something amazing. Be proud of your accomplishment. Do not allow the things left undone to steal your joy.

5. We MAKE time to do things that renew us. This does not happen automatically. No one is going to carve 15 minutes out of your day for you to do the things that refresh you. YOU must do this for yourself. You need this. Force yourself to find a way to grab a few minutes with something you love, whether it is time with a good book, time in your sewing room, time to relax with your spouse or in a bubble bath, time to train your goats...

There’s a corollary here that might help you locate a few minutes. It’s good to know everything you can about your child’s disability. Just be aware that you can lose yourself in researching the condition and its treatments (just ask how I know this to be true), especially online. It can be very helpful and quite fascinating, but hours can fly by without you realizing. Set a timer.

And when that timer goes off, take those 15 minutes of personal renewal. Please. You will feel so much better for it!

6. We learn to prioritize our commitments. We have to make what little discretionary time we have in our days count. Count Big. Count Big for the things we are personally vested in. Save the precious moments you do have left for the things that matter terribly to you.

I’ve heard moaning from several places about the noticeable lack of participation by special needs parents on school PTSA boards. Um, excuse me. Not only does our child with disabilities – and the rest of our family – require our time, but according to our life goals, the PTSA book sale may just not come up on top. Great if it does! PTSA is an excellent organization with good goals. But if it’s not a personal priority, we don’t need to feel obliged to make excuses.

We do not need to feel guilty saying “no.”

7. We learn to embrace our slow pace. I’ve told you earlier about my wise mentor, Vicki. Once when I complained to Vicki about how long it took to get through the basic routines of our day as I struggled with all my daughter’s “baggage,” she gave me a lovely piece of advice.

“Rose-Marie,” she said, “being forced to slow down is a gift. When you have to move through life slowly you will learn to see things you would have raced past before. Having to slow down allows you to savor life.”

Don’t you love her?

Several years later, Vicki’s daughter died unexpectedly. In one of our conversations when I asked how she was coping, Vicki said, “Something awful is happening. I am starting to hurry again like the rest of the world. I am forgetting how to live slowly...and it is terrible.”

There are days I struggle to remember that my slow pace of life is a gift. And Vicki is right. We may not accomplish as much in a day as our neighbors, but we have seen the small miracles.

We have given our children comfort and assurance. We have tangibly demonstrated love by our patience in accommodating their needs. Our actions show our children that they are precious to us. We have time to delight in these remarkable young people.

The hurry in life doesn’t matter; it doesn’t leave anything to show for itself but stress and gray hair and speeding tickets.

While I'm excited for what awaits on the other side, I’m in no race to get to the end of life. I might as well enjoy the scenery along the way. My child is teaching me this gift.

How about you? What advice can you share about living days where not all 24 hours are left up to your plans?

“Mouse House:” Adapt a Computer Mouse for Switch Users

For just a couple dollars or less, you can turn your existing mouse into a single switch.
Sure, there are some snazzy commercial switch adapters that allow students with motor impairments to operate the computer with a switch. They are programmable and allow for input from multiple switches. They are very cool. And very expensive for families on a budget.
Enter the Mouse House. A peer or adult places the cursor over the spot on the screen you want to make available to the child, such as the “forward” button on the PowerPoint books we made last week. The Mouse House holds the mouse still and provides a big surface to activate the mouse’s left-click. Caution: don’t abandon your child, as the cursor may manage to slowly sneak off the target on the screen. Be ready to jump in and reposition the cursor if needed. Also, if your child is reading books online, make sure the forward button doesn’t change position from one page to the next. Some online sites pay good attention to this, but not all are that careful.

Mouse sits in plastic packaging from an older mouse.
The blue ball presses the left mouse button;
the sponge strip pushes the cover back into its original position.

Whenever I show this at workshops, it draws a TON of interest. Today I want to share how simple and cheap it is to make one of your own.
Basically, you'll start by creating a snug little "bed" to hold the mouse secure in a photo album cover that has had its pages removed. Then you glue a bumper to the inside cover directly over the left-click button on the mouse. Add something springy to push the bumper off the mouse button until the next time the album cover takes a swat and you are good to go! All for between free and $3.00.
You’ll need a few basic supplies:
--a cheap, chunky 4x6” photo album from the bargain aisle (or Dollar Store)
--something to hold the mouse in place. Use cellulose foam sponges (NOT the kind that get stiff once they’ve gotten wet!) OR the gray open-cell foam packing from your latest electronic gizmo OR the plastic packaging from your mouse OR Wikisticks (those waxed yarn strands that occupational therapists love)…your imagination is the limit!
--something to make the cover springy. The foam sponges used to hold the mouse in place do this very well.  You might also try double-sticky foam tape mounted to the photo album cover opposite the highest point of the mouse (leave the paper on one side!) or a leftover bit of foam insulating tape from your latest weatherproofing project….
--a bumper. Linda uses unmelted glue stick; ours uses a plastic ball from a pony tail holder that lost its battle with the cat. You could use a bit of dowel, a broken part off a toy, a shiny pebble from a rock tumbler…anything that won’t scratch your mouse button.
--8” of Velcro
--hot glue
--an electric knife or a serrated bread knife if you're going be cutting cellulose sponges
--most importantly, Linda Burkhart’s directions for a mouse house. Read over Linda’s directions, but feel free to substitute supplies you may have around your house.
If you ever have the opportunity to hear Linda speak, jump on that chance. She’s quite delightful and engaging. I really appreciate her wonderful approach to adapting materials as inexpensively as possible…a woman after my own heart!
Release your inner Occupational Therapist and have fun making your child a Mouse House!

Adapting Books for Computer Access

To become readers, children need to read. According to Dr. Karen Erickson, one of the nation’s leading experts on literacy for people with disabilities, children need access to 1500 books to develop literacy. In order to qualify, these books must be accessible to the child.  

But kids with severe motor or reading challenges may not be able to access traditional books. We have talked about adapting books to make them more physically accessible. But even these adaptations don’t allow independent reading for every child. What if a child cannot hold a book at all or turn its pages? What if he has not figured out how to decode writing and needs to have the book read aloud so he can stay engaged?

For kids with these issues, the computer opens up wonderful possibilities for access to books. It can remove some of the physical and cognitive barriers that make traditional books inaccessible. They can hit a switch to turn the page, or even have the pages turn automatically. You – or the computer, if yours is equipped with a pleasant voice – can read the text out loud.

Through the computer, kids can have access to the same books used by their classmates, just in a different format. They can have opportunity for pleasure reading.

And there’s more good news – it is easy to adapt books to read on the computer! Once you get into a rhythm, it even goes pretty quickly.

There are plenty of commercial software programs commonly used with students in special ed classrooms that can display books on the computer:  Classroom Suite, Clicker, BoardMaker, My Own Bookshelf…the list goes on.

The good news for families – or for school districts affected by the current economy – is that books can also be easily created in PowerPoint, a program commonly found on the average computer. I’ve never used OpenOffice’s Impress myself, because my computers have always had PowerPoint, but my understanding is that it can be used similarly – for free!



Before we get into the nuts and bolts of creating an adapted book, let’s take a minute to talk about copyrights and Fair Use. Copyright law prohibits the willy-nilly copying and dispersing of materials to protect the interests (and livelihood) of those who created them. The Fair Use Act says that materials can be adapted for access by people with disabilities, provided we follow certain guidelines. We must own the book, for example. The adapted form is for use only by the person having disabilities (i.e.: we do not sell or otherwise circulate the adapted material).

Here’s a great way for teachers to demonstrate Fair Use as they adapt books. Save the adapted copy to a disk which is then stored inside the front cover of the book. This demonstrates ownership of the book – it’s right there in your hand, after all, and not on some library shelf! It also makes organizing a breeze, because you know where the disk should lives.

Okay, with that under our belts, let’s get started! I’ll walk you through an adaptation of Joyce Dunbar’s book Baby Bird (Scholastic, 1997).

1) Create a new folder on your computer desktop and name it for the book. Important: you will drop EVERYTHING related to this book in this folder. It will save you time not to have to fiddle with a finding the file each time you need to open it. Trust me.

2) Take a “picture” of the front cover and all the pages of the book. You might like to scan them on a flatbed scanner, which allows you to fold lots of laundry at the same time. It also tends to result in less “doctoring” later. Save the scans to your Folder.

You might prefer to snap a picture of the pages with a digital camera, which is a very fast way to accomplish the capture. It also works well for oversized books that don’t fit on a scanner. Just be sure your camera is steadied at the same exact distance for every shot. And use high resolution. Import them to your Folder.


This is how I set up for a “book shoot.”  
A Velco strap on the tripod anchors the camera to a chair.
The tape on the floor keeps everything lined up j-u-s-t right.

3) Correct the pictures in a photo program (I use Paint.net – it’s free and easy to use).
            -- Crop out anything around the edges of the page.
            -- Adjust for brightness if needed (the pages may need some corrections along the spine, too).
            -- Adjust any tilting (sorry, Paint.net doesn’t do this…better to shoot straight)
            -- Name the pages (00, 01, 02, etc.) and save to the Folder.

4) Set up your PowerPoint template. For a VERY complete discussion on this, check out Create Talking Books: PowerPoint from the Assistive Technology Training Online Project. It gives you links to Richard Walter’s ever-so-complete guide to building a template from scratch, How to Create Talking Books in PowerPoint ’97 and 2000. As well, you will find an 8-page quick start guide. And a template. 

If you want to build your own template, whether in PowerPoint or one of the assistive software programs, it’s basically a blank page with next page/previous page buttons. You may wish to have pages “turn” automatically or to enter a delay feature to prevent rapid-fire switch hitting.

            -- Open PowerPoint and set the slide for a blank layout. I’ll use PowerPoint 2007 in the  screenshots. I like to activate the gridlines (“View” tab) so I can line things up nicely.


            -- Add page navigation buttons. Place a Previous Page action button to the lower left corner and a Next Page button to the lower right (Insert > Shapes > Action Buttons). Size them equally, making them large for fledgling mouse users or small for switch hitters, using the gridlines as a guide.


            --If you want a clickable button to speak the text, add an optional Play Sound button. We’ll come back later to adding speech, but for now, if you want human narration, slip that button into the template.
            --If you need to set a delay to prevent repetitive hits (or just slow the kids down so they are more likely to engage with the text), cover the whole page with a Magic Invisible Box (Insert > Shape > rectangle). Temporarily, it will block out the page; that’s okay. You want the rectangle to block access to the buttons and then “disappear” so the buttons become available to act. Select Animations (1) > Custom Animation (2) > Add Effect (3) > Exit (4) > Disappear (5). Decide how much time you need the navigation buttons to remain unavailable and enter this in the timings.


Now doubleclick “disappear” setting to call up the Disappear Effects box (1). In the Timing tab (2), select “after previous” (3) and set the number of seconds to delay (4). This can vary according to your student’s needs. NOW format the rectangle shape to “100% transparency” and “no line” to make it invisible. "No Fill" will not substitute here; you need 100% transparency to make the magic happen!


            -- To make the pages forward automatically instead, set the slide transition (Animations (1) > Advance Slide (2)) to advance automatically after a set number of seconds. You can adjust this up or down to accommodate different lengths of text once you start filling in the template.


            --Save the template to your Folder.

5) Import pictures to the template. Be sure to line them up with the gridlines so every picture has the same dimensions. This makes for a much smoother read!


6) Adapt text if needed. Your student may need the text to be rewritten in a larger or simpler font or reduced in amount. Also, if you plan to use text-to-speech with this book, there must be “written” text for it to recognize rather than a photograph of text. I like to cover the existing text with a rectangle, set the rectangle shape to “no line,” and then color-match it as close as possible using the Custom Colors dialog box. If you move it so the bottom-right corner is close to your text box, you can eyeball a pretty decent match.

An interesting utility for perfectionists might be OB Utilities’ Color Picker (whose trial offer freaked out my Norton antivirus, so I couldn’t test it to give an opinion).


This is the same page as the last picture, only with a text box
added on top of the original writing.
Isn't that so much easier to read

7) Add narration if desired. There are several ways to go about this.

To narrate individual slides with a human voice, you can Insert (1) > Sound (2) > Record Sound (3). Click the red dot on the Record Sound pop-up and save it the Folder. It creates its own little sound icon, which you can enlarge to cover the sound button at the bottom of the page.


If you record outside of PowerPoint using something like Audacity (free, wahoo!, gives you lots of control). PowerPoint uses .wav files, so it’s easy to export these from Audacity to your Folder. Hyperlink this sound (faithfully saved to your Folder, right?) to the button at the bottom of the page.

You could also have the narration play automatically with a delay if you attach it to the exit action of the Magic Invisible Box (see Item #4, setting up your template). Look under the “effects” tab for sound settings; here is where you attach the sound file from your Folder.

Another option is simply to narrate the whole book, rather than individual pages. To do this, click the View tab (1) > Record Narration (2) > OK to the pop-up box (3). Choose where you want to start (the front cover is a good place!) and walk through the book, reading aloud as you go. The narration will record BOTH your voice AND the timing for each slide.


One last option is to have the computer read the narration. For this, you will need a free Add-On called PowerTalk. It will read the text you have typed onto the page. To use, launch PowerTalk first, then the PowerPoint presentation or show you have saved.

8) Save the PowerPoint to the Folder. Burn the Folder and all it’s contents to disk. Keeping everything in one folder insures that the sound files will copy with the PowerPoint. You can certainly save a PowerPoint package, but I like the freedom to access the original creation and make adjustments for future students – or your own child as she progresses – with different skills. I like to also save a PowerPoint Show (.pps) copy that cannot be altered. This avoids, er, accidental changes. If you include the student’s name in the filename, you will know you are opening a copy that is accessible to that student.


 9) …and store inside the front of the book. Here are a couple tricks make this storage system work especially well.
1)      Print labels for each disk from a picture of the book jacket. This makes it easy for students to match the pair before putting them away. I personally use Avery Dennison’s “CD Stomper” and labels.

2)      Fix a paper computer sleeve or an envelope to the inside of the jacket with clear packing tape or clear Contact paper to make it strong.

3)      If the books will be carried by students (let’s say you have a wonderful helper who does cleanup for you), I recommend facing the opening of the enveloped towards the spine. This keeps the disk from sliding out.
The envelope on the right keeps the disk from slipping out
when the front cover is closed.
There! It sounds more complicated than it really is. Once you make a book or two, you’ll be able to crank them out in little time. Also, for teachers, this is a great job to assign to parent or high school volunteers, especially those who can only help out from home.

Let’s get reading!

* * * * * * * *

You might also like:

Adapting Books for Physical Access
Adapting Picture Books for Lap Reading

Scholastic eBook Sale...and an access tip!

In case you hadn’t heard, Scholastic is offering a great selection of eBooks for just $1.00 (US) at their Teacher Express storefront from now until 1/31/11. There are over 520 titles, most of them workbooks. They cover all grade levels and topics, so you might find something useful for your classroom or for your child at home. Thanks to Jonathon Wylie at The Education Technology Blog for spilling the beans about this great sale!

Here’s a tip for making PDF worksheets more accessible for kids with learning or motor disabilities:
You can easily enlarge the page, reduce the number of problems, or eliminate distracting graphics. Just open the full page on your screen and copy the screenshot with your print screen key [PRTSC]. Then paste it into a paint program and crop out distractions or enlarge just the part of the page you need. (Note: If you will be using just a small portion of the page, enlarge that part before you hit Print Screen to maintain a clear image). Print it off and your kids are good to go!

Full screen view of page--I want to give only the problems
in the center of the page on this sample.

1. Zoom in to the portion of the page you want to print
(if you want the full page, check the full page view button)
2. Snap a screen shot [PRTSC]



3. In Paint, select the portion you need and crop to that section.
You have cut out the picture of the screen around it.

4. Open the "Page Setup" menu and choose the page orientation,
centering, and scale to 1 by 1 page. 

Here is the final cropped and ready-to-print outcome!
The page has fewer problems to complete, fewer visual
distractions, and larger spaces for the student to write.
[Just an FYI about downloading from Scholastic, you do need to right-click on the Download link and “save target as” if you want to keep a copy on your drive. If you click to download, the file’s save feature may not work (it didn’t for me, anyway). If you have any questions about saving, check out their Help files.]

Why Does God Allow Suffering?

Why does God allow suffering?
As parents of children with special needs, it’s an in-your-face question that we wrestle with. It’s hard to ignore.  Regardless of the issues our kids face, we ache to watch them suffer. If they must struggle, we’d like to at least understand why.
It’s such a huge question. Theologians have struggled with it for centuries. I’m not going to come up with any earth-shattering insights…I just bumble along like everyone else.
I’ve certainly asked why a million times. Why would God allow an innocent child to suffer pain? Why would He allow my baby to suffer?
I’ve asked a thousand variations…why would He allow my child to be robbed of speech? Of her ability to chew? Or to use her hands? Or to walk? Why must she hurt? Why must she have seizures? It isn’t the medical explanations I’m talking about, it’s the soul-gripping why.
I don’t have the answer. But when I quit focusing on the question of why, only then am I able to see tiny bits of the puzzle more clearly.
Maybe it’s just me; maybe it’s more universal than that. Maybe you see yourself in this too?
The problem with why is that it centers my attention on the hurts, on the worries, on the things that have gone wrong. I get so caught up in the problem of suffering that I can’t see past it. When I hang on tightly to my obsession with why, I can’t let go of it to grab God’s hand.
When our daughter rapidly lost her early skills and she experienced pain that we couldn’t identify at that point, it was terribly hard for me to let go of the question of why God would allow this. I couldn’t see past the crisis to the fact that He still held us in the palm of His hand.

But God was faithful to His word. He did (and still does!) hold us in His hand through all the hard times, just as He promises throughout the Psalms and Isaiah in the Old Testament (I was going to list some specific references, but there are so many. If you don’t have a concordance to look them up, you can do a search for "hold me in your hand" through NETBible.org).
I just had to shift my sites from the desire for an explanation of why the Lord would allow our daughter to suffer…to the trust in Him to hold us through it.
Taking my eyes off the problem of understanding why—something we may never know anyway—allowed me to see some of the blessings that have come from our situation. I would not have noticed them if my focus stayed on the question.
                --our extended family has grown closer
                --the overwhelming majority of teachers who have worked with our daughter say she has taught them more about teaching than anything or anyone else
                --we’ve made dear friends in this circle of disability
                --we’ve received practical support (very tough for me) and been able to pass it on to other families…
                --I’ve seen growth in my own character (slow, but coming):  advocacy, acceptance, better calm under pressure, less easily embarassed
                --I’m more aware of areas I need to grow:  patience, forbearing, grace, releasing control
                --problem-solving has become a standard practice for our family
                --we’re taking life a bit slower and savoring each day as it comes
To be quite honest, I hadn’t thought about the question of why in quite a long while. Memories of letting go of that why question came this morning when my alarm wakened me with Natalie Grant’s song, Held. In it, she sings of a young mother’s grief over the death of her sick infant. The words remind us that though there is no explanation when our world falls apart, the Lord faithfully holds us. If you don’t know the song, the words are below. You can hear Natalie Grant sing it here (but caution, have Kleenex handy. It gets me every time!).
Maybe it is okay that we never know why in this lifetime. God has His own reasons for allowing suffering. Surely they are bigger than the little pieces of the puzzle we catch glimpses of every now and then.
But we are held in the palm of God’s hand, and that’s more than enough.


Be blessed in the palm of His hand today.

* * * * * * * * *
HELD by Natalie Grant
Two months is too little
They let him go
They had no sudden healing
To think that providence
Would take a child from his mother
While she prays, is appalling
Who told us we'd be rescued
What has changed and
Why should we be saved from nightmares
We’re asking why this happens to us
Who have died to live, it's unfair
This is what it means to be held
How it feels, when the sacred is torn from your life
And you survive
This is what it is to be loved and to know
That the promise was that when everything fell
We'd be held
This hand is bitterness
We want to taste it and
Let the hatred numb our sorrows
The wise hand opens slowly
To lilies of the valley and tomorrow
This is what it means to be held
How it feels, when the sacred is torn from your life
And you survive
This is what it is to be loved and to know
That the promise was that when everything fell
We'd be held
If hope if born of suffering
If this is only the beginning
Can we not wait, for one hour
Watching for our savior
This is what it means to be held
How it feels, when the sacred is torn from your life
And you survive
This is what it is to be loved and to know
That the promise was that when everything fell
We'd be held
[Repeat Chorus]
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You might also want to look at Finding Comfort in Psalm 139


For Those Who Sew: Favorite Wheelchair Clothing Sewing Sites



If you sew, you have a tremendous gift that can greatly benefit the wheelchair user in your life. If you want to learn to sew, come on aboard! You’ll be glad you did.

Sewing gives you the opportunity to…
·       custom-create fashionable clothing that fits just right. You can incorporate details that make sitting or stretching more comfortable, dressing easier, and managing openings simpler. You can add special details that give secret access to stomas or give tons of extra pocket access for electronic devices …you name it!
·        have creative license over colors, fabrics, and details. It’s fun to design clothing that reflects the wearer’s personality!
·        save a dollar or two. Sewing is not the inexpensive hobby it once was, but garments you create yourself are often considerably less costly than those sewn for the small adaptive market.
With that in mind, may I present two fabulous online resources with you in mind!
The first is Fashion Freaks, with free sew-it-yourself clothing patterns for wheelchair users. This is the go-to site for developing your own customized wheelchair-friendly patterns based on basic patterns you can download from the site. While it is designed for adult women’s (XS to XXL) and men’s (S to XXL) clothing, it isn’t too difficult to scale the sizing down for children. Fashion Freaks provides the pattern pieces and complete instructions for sewing jackets (several styles), pants, and a skirt. All are designed with a seated wearer in mind. There are some helpful tips for making clothing fit and function better. You’ll also find a great section for sewing inspiration.

The second is a fact sheet full of terrific tips brought to you from the Disabled Living Foundation in London. It provides ideas for purchasing ready-to-wear garments with a wheelchair user in mind, as well as ideas for adapting commercial clothing. There are also some tips for adapting commercial sewing patterns to make them work more successfully for people who spend their days sitting.

If you know of other sites that offer tips for sewing clothing for wheelchair users, would you please share them? It would be great to share a nice little collection for people who want to sew for their family members who use wheelchairs. Thanks!

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The AbleData site isn't specific to home sewing, but lists a great number of ready-made adaptive clothing sites you might be able to use for inspiration. Scroll down the the "clothing" section to find the categories that would be useful to you. There are some really creative designers out there!